jim henson

The doctors have discovered that Molly has Hereditary Hemorrhagic Telangiectasia otherwise known as Osler-Weber Rendu Syndrome. With Molly, this manifests itself in Pulmonary Hypertension which is very rare.

Her family is devastated at this new news, although this doesn't change much immediately for Molly.

She did a CPAP trial and handled it well. She will get a Trach and G Tube in on Monday and they are talking about moving her, eventually, to rehab to help her regain skills lost by the brain damage she's suffered.

Please continue to pray for Molly and her family as they endure this suffering.